A MISPLACED BLOG BY A DISPLACED WRITER TYPING IN A CONFINED SPACE THE SIZE OF A MERE UNIVERSE. IF YOU ARE RUNNING AN AD-BLOCKER, YOU'LL MISS A FEW FEATURES LIKE THE FANTASTIC POLL. JUST SAYIN'.

Sunday, 19 March 2017

DEMENTIA CARE: MEETING EVERYONE ON THE BUS.

When it comes to arranging a trip anywhere, to town, to the city, to the far reaches of Mars, I am the one who does all the arranging. The job starts in my head, and the work is nightmarish. I take account of all the shit that could go wrong.
   Look at all these blocks of shit in my way. Shitty blocks.
   Planning means knocking shitty blocks away, and it also means not dropping fresh blocks of shit in the burbling place of the shitty blocks I knocked away. Luckily, this is all just talk. Or thought.
   Come the day, I have to deal with the same random nonsense everyone else faces all the fucking time. But I will have the cared-for in tow, for added fun and games. When you have someone in tow, it’s important to be in charge of the towing. Don’t let the other person tow you. But allow for slight changes in direction.

Stay flexible. If you have a routine, stick to the routine…just…make sure you can handle that routine earlier in the day. A recent trip to the dentist illustrates this, almost perfectly. And that’s a fucking surprise, for a start.

The trip to the dentist begins with the previous trip to the dentist.
   On the way out, we arranged the next appointment. I always need to know the day of the week and the hour of doom. It’s best to avoid a day with supermarket shopping being delivered…
   I have leeway with the shopping, but I don’t want to disrupt that routine too much. Almost any day of the week will do, for a dental appointment. The hour of doom is a different matter. Arranging a time for an inspection, I have to take an hour that is well into the morning.
   There’s no problem with 11.00 or with noon.
   When I go to the dentist, I take the earliest appointment so that I can be back home and acting as a carer as soon as humanly possible.
   But I can’t inflict a 9.00 o’clock start on the cared-for. There’s a whole routine to slog through before we get out the door. And I am already awake at 7.00 for a dental appointment at 11.00. I don’t see the point in getting up at 5.00 in the morning for a 9.00 o’clock dental check.

Pills. Brushing those teeth. Arranging outdoor clothing. Watching the weather fall in big drops from a steel-grey sky. These things burn time. I see the bus fly past at 10.30. We march out for the next bus at 10.40, and make it to the dentist in that narrow window from 10.50 to 11.00.
   The whole trip is tense. And funny as fuck.

First, I make sure the travel card is in place, zipped up. That’s my opening move. Her first chess-move, when she is in the coat, is to unzip the pocket and take the card out. Before she can deposit the card in at least twenty different places, I am on that problem like flies on shit.
   No, we really are zipping that up.
   Why does she need to wear waterproofs?
   Because it is cold and windy and almost rainy. Elderly people feel ice and snow when it rains. They feel ice and snow when it is sunny. There’s a law of physics that makes old folks feel cold when it is warm. This is Scotland. It is warm for five minutes. If you are old, even that feels cold.

Why are we walking along this path?
   If we disappear behind the trees, the bus driver won’t see us. But if we walk along in front of the trees, the bus driver will see a little old lady struggling to reach the bus in time. And that bus driver will stop right next to her and be the saviour of the hour.
   Unless the bus driver roars past with evil intent. Then the bus driver is renamed Cunty McCuntface.

But we are there at the stop in plenty of time to meet everyone. My mother knows everyone, and all their pals. The dementia makes her think she knows everyone. I don’t know anyone. All these people my mother meets…hell, they could be known to her. How would I know?
   She knows Billy Connolly rather well. And Robert De Niro. Clint Eastwood, now I think of it. She’s met them all. I’ve met…three famous people. I wouldn’t say any of them are famous. Wait. I’ll run an internet search on them…

Two out of three are on Wikipedia. To my knowledge, two out of the three published books. One out of three was a dick before he was famous – which is when I encountered him. I don’t believe he renounced his total dick status once he became known. In the final analysis, I’d say one of them is famous today. The one with a Wikipedia entry and a book out. He’s not a dick.

Hugs all around at the stop, as it started to rain. We all ushered my mother under the shelter, and she hugged good friends. I don’t know who they are. Another fellow stumbles out of the downpour, and he gets a hug as well. These people all know her by name.
   There are a few jokes. A good spot of banter. You might see she’s a bit frail, but you’d be hard-pressed to say she has dementia. Inevitably, one man drops in a piece of sad news about so-and-so.
   Yes, my mother heard about that.
  Who the fuck from? No one. She’s inserted herself into the conversation, and that is part of history now. The bus comes, and everyone plays at being polite.
   No, you go first.
   On you go.
   You go.
   Luckily, there’s a limit to this. She goes first, and I sweep in behind her to catch her if she stumbles. I’m the youngest and fittest in the crowd, and it’s my job to see to shit like all these high-powered stunts. You know. Stepping on a bus.
   She knows where she is going.
   This is true in a vague sense. She knows the main destination that she must request, and she requests it. The travel card works, and off she goes along the bus. I take my ticket, and turn to see that she’s met everyone on the bus.
   Hello here.
   And hello there.
   Hello to everyone.
   They know her, and call her by name. These people haven’t seen her in ages. Where’s she been? How is she keeping?
   She’s fine.
   There’s a sexy woman on the bus. A sexy woman who dyes her hair a suspicious shade of auburn. But we let that pass. It is not a crime. My mother makes straight for her and sits down to say hello. I have one option. Take the seat across the aisle.
   That way, I can earwig most of the conversational blunders. She’s shouting to the back of the bus to say hello to another old pal she’s discovered. Is there anyone on the bus she doesn’t know?
   The driver is usually Jim. Jim is always the driver. Today, the driver is a woman. She might be Jim, too, for all we know. Later, in memory, the bus driver may well become Jim.

I recall from previous excursions that my mother does indeed know a bus driver named Jim. And he knows her. Or he is quick off the mark to let mistakes slide, and engages in cheery banter with total strangers to avoid the unthinkable alternative…slashing his wrists with a saw improvised out of a straightened roll of bus tickets, if people dare call him Jim. Paper cuts are the worst.
   This is Scotland. Everyone with a penis is called Jimmy. Or Jock. Except for that famous guy. He’s always a dick.

The bus starts up and we are off through the rain. I catch fragments of the conversation across the aisle. Too many puddles swish and shush the words. Sexy woman clearly knows my mother, and brings up a few details. Where is my mother going?
   She’s going to town. But where, though?
   I chip in, as a reminder. Dentist.
   That’s right. To the dentist.
   Sexy woman adds to the chatter, above the sound of the puddles.
   Is that your son? He’s a good son.
   Run away with me, sexy woman, and I’ll overlook your curious shade of auburn.
   More stops, and more people to say hello to. My mother knows everyone getting on this bus. It’s as though we are on a day-trip with all the friends. One friend has a suspect shade of black hair that is only possible by means of a bottle. But we gloss over this.

I hope the sexy woman is going all the way to town. If not, my mother must step into the aisle to make way for her exit. That’s a danger I usually avoid. I try to make sure she plonks herself down on the nearest seats, reserved for the elderly and their carers.
   Giving her the seat by the window offers a vast panorama of condensation-streaked glass to stare out of. The landscape is obscured by the window, and the rain beyond it. And by the grey buildings under the rain. Leaving all that aside, the view is terrific.

We reach town with no alteration to the seating. Now EVEN MORE people, emerging from the bus, stop to say hello. We are cornered and queued-upon. Woman with suspicious levels of black in her hair decides she can’t queue to say hello, and is swept away by the tide of humanity.

This leaves us with a woman who stays just over the way. She wants to know everything. Hasn’t seen my mother in two years. Stays just there. What is she in town for? I furnish that information with a sense of urgency. It is an appointment, after all.
   My mother talks over family matters. She doesn’t quite remember her granddaughter’s age, or if the girl is at school. But she’s taller. Granddaughter comes complete with a fictional baby brother my mother invented from half-memories. She tells this story consistently enough for the tale to feel solid and real.
   The woman nods, and drops sad news about her dog. People are always dropping sad news on my mother at these bus-jamborees. I wish they’d keep their lists of sad things to themselves. Animal, mineral, and vegetable.
   Were you there for the Grand Onion Massacre last week? Shocking business. A great aunt’s neighbour’s rabbit had to go to the vet after it caught a dose of the clap from the village idiot’s hamster.
   Sad face.
   I hustle the conversation to a close with another reminder that the dentist awaits. We tear ourselves out of the wet paper bag that is the sad chat about pets.
 
Crossing the street, I have someone in tow. I make sure she is over the way before another bus comes zooming along. A complete backside of a driver faffs about in the bus-only part of the road and tries to knock me down at the treacle-coated rate of one mile per hour.
   Miraculously, I somehow manage to dodge this flaming low-velocity turd. And I steer my mother to deeper safety, away from the oncoming bus. She’s telling me to watch out for traffic. When you have someone in tow, it’s important to be in charge of the towing. Don’t let the other person tow you. But allow for slight changes in direction.
   We change direction just enough to survive crossing the road. My mother’s speed is around one mile per hour. It’s doubtful that she’d have avoided the car. Strangely, though, she moves faster than the speed of light when her ninja skills call for her to disappear inside a bus and find a new seat beside an old friend – who may or may not actually be a friend.

Then the fun begins at the dentist. We are asked to fill out the medical form. I’m not saying I know this by heart, but I’ll be ticking NO to most of the questions. The form is updated periodically. Just to be sure, I ask the receptionist about a few of the finer points.
   Filling out the form gives us something to do while we are kept waiting. The television runs light cheery breakfast fare. I want to smash the presenter’s face in with a blunt object…say, a steamroller.
   Music intrudes, and my mother sings along to the song. She informs me that Sir Rod Stewart sang that song on the television the day before. Who am I to disbelieve her?

I rattle through the questionnaire, stopping only to confirm or deny the minor quibbles set in front of me. There’s a definite relief at noting no bouts of unconsciousness. Once I mention this, however, she’s pretty sure she’s had bouts of unconsciousness.
   Aside from knowing everyone, including Sir Rod, my mother knows that she’s had every disease imaginable and unimaginable. All we can do is laugh our way through the rest of the questionnaire. I reach the part that asks if the female filling out the form thinks she is pregnant.
   More laughter fills the room.
   People come in after us and are seen before us. Annoying. We don’t know the whole story, though. Hell, who does?

Ultimately, we head to the chair. Care is taken here. The dental inspection is fine. I’m left holding coats and bits and pieces, sitting in the corner to handle any questions. The dentist floods my mother’s mouth by mistake, and sponges are applied.
   My mother laughs it off. No, really. The whole thing is hilarious. We leave the dentist, all smiles. Except. That we don’t leave the dentist. It’s such a slooooooooooooooooow day. We wait for the appointment. Then on the way out, we don’t go out.
   Instead, the gloves fail horribly. She can’t get into them. The inner lining has worked loose, giving rise to degenerate thumbs and alien fingers. I take a year of my life to sort the mess. In the meantime, an elderly lady approaches the seats. She has a stick to help her along. My mother naturally thinks she knows this woman, and begins to say hello.
   The other woman calls my mother by name, never gives her own, and then reveals that they went to school together. She remembers my aunt, as well. Very small world. It was lovely to see her, whoever the woman was, and she disappears to see to her own affairs.
   I am left struggling with the gloves of pain for another six months. Almost time for the next appointment. And that takes us to the next appointment. I approve the day, and the hour of doom. It’s High Noon next time. Gary Cooper not included.

We head for the bus. Apart from the dental flooding, we reach home without incident. I immediately change the rogue pair of gloves for a pair that’s far more manageable. I’ve lost track of the number of people we spoke to. My mother knew them all.

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