A MISPLACED BLOG BY A DISPLACED WRITER TYPING IN A CONFINED SPACE THE SIZE OF A MERE UNIVERSE. IF YOU ARE RUNNING AN AD-BLOCKER, YOU'LL MISS A FEW FEATURES LIKE THE FANTASTIC POLL. JUST SAYIN'.

Thursday, 1 August 2019

DEMENTIA CARE: REMEMBERING THE WAY TO THE MEMORY CLINIC.


It’s that time again. Letter comes in. Visit the clinic. It’s getting on for mid-July, so I forecast rain. In the week leading up to this appointment, I have to drop the news on a carer. Once I know who that carer is. It’s holiday season, and carers disappear…
   They are replaced by strange faces on a daily basis.
   Unless…
   They are replaced by the non-regular regulars. These carers come in and cover other shifts so regularly that they are unofficial regulars. I have no hope of seeing a regular face for the bulk of the week. My one chance is to catch an unofficial regular.
   Yes, I can phone it in to Carer HQ – located deep in the Amazonian Zone. But I’d rather not. If all it takes is a quiet word with a face in front of me, I’ll opt for that instead of a phone call.

The face in front of me is an unofficial regular, and she’ll be covering the day of the appointment. I explain the difficulty. Clinic visits are so far apart that, the last time one was arranged, there was no clash or conflict with the daily carers coming in. There weren’t any daily carers coming in…they popped in three days a week.
   Eventually, that low frequency rose to daily. The last clinic appointment happened on an off-day. This gave me added complications, but I sailed through those at the time. Now the task is simple. Can the carer arrive early on the day of the appointment?
   Yes.

Sounds easy. Anything could happen. Luckily, I was up at the crack of dawn…as was the carer…and we had our rendezvous at the appointed time. Pills were out of the way by then. All we had to do was run through the routine of heading up the stairs to the bathroom. Then I’d tidy things downstairs and double-check I’d left plenty of time.

A joke. We’re never seen on time at the appointed hour.

The carer comes and goes. I started arranging the big thing the night before. This clinic trip involves a wheelchair and it is better to send the wheelchair down the ramp. The alternative is to escort the passenger to the wheelchair out in the street and then faff around in all weathers getting into the wheelchair. I prefer option three: teleportation.

Strangely, teleportation is off the menu for technical reasons of science and shit. (I looked that up on the Wikipedia™, and I’m talking word-for-word explanations here.)

Okay. For reasons of science and shit, we don’t teleport there. The best of the worst options is to get into that wheelchair first and then wheel around the house to the ramp. I start with the ramp. It’s in two parts. Main ramp is heavy, metal, will slice your fingers off, and barely fits at the front door.

Back door is no good.

The other part of the ramp is for the inside stage of the journey, up out of the house and over the threshold to the exit ramp. And this smaller ramp is heavy, metal, will slice your fingers off, and barely fits at the front door.

Back door is no good.

I retain all of my fingers after placing the ramps. It’s a long struggle with the seatbelt, but the seatbelt is important. There’s no polite way of getting out of the house. I offer a choice. Outside going forward or outside going back. It’s important to offer a choice.

The cared-for chooses wrongly and decides to go out facing the world. There’s a slight bump I can’t control from where I’m hanging on, and you can hear the screams for a mile.

But that’s it. We are off, on time, and with no rain falling. It’s going to be close. The trip is a weed-strewn affair, and I dodge Triffids at every turn. There is, surprisingly, one turd of dog on the trip. Turd of dog is skilfully negotiated. I don’t have what it takes to count insect turd, so we gloss over that nonsense.

More options. This open road approach, or the windy path. The road is chosen. Zero traffic, so we are all good. The place is dotted with lowered pavements. First one we choose is the worst-maintained in the whole country, of course.

Another scream for a mile after the mildest of bumps.

Now the hard part. A stretch of road. Empty. In clear conditions. Good light. Nothing coming. Steady visibility ahead. We’ll see it coming, whatever it is. Or…find a lowered spot of pavement, and transfer back to safety – the safety of a really shitty pavement.

I take the risk of sticking to the road, and I stay off the moor for fear of being bitten by a werewolf. This happens out there in the wilds more often than they are letting on.
   Soon enough we are in the wilds. Away from houses and twisty paths and roads, we disappear under the edge of the woodlands that surround clinics all across the globe. Dogwalker says hello. There is a chance to return the greeting, but the cared-for was distracted by the dog.

The trip is quick enough that we’re on time. Me, the cared-for, and the wheelchair. In we go. There’s a duel as a motorised wheelchair comes out while we head in, but I use driving skills to avoid the crash. Then it’s the assault course of doors before we reach the combination clinic.
   Ever since the amalgamation, the clinic space has been shared with drug addicts. You see a younger type of customer in the waiting room. Those clients head left and we go right when the time comes to split up. Telephone chatter from reception tells me the doctor isn’t even in.
   Well, what did you expect? That we’d be seen on time? The telephone chatter shifts, and the receptionist reports that A PERSON is ready to see another person now. The person share’s the name of a computer game character. We’ll just say LARA CROFT for reasons of anonymity.
   I was raiding a tomb recently, with Lara Croft. Not sure if the game would operate well on my computer, I downloaded the sample that lets you play the start of the game. Computer games are there for me on occasion. They are late affairs, when almost all of the caring is done for the night. If I don’t feel tired and I haven’t an early appointment to see to, I’ll finish nightly routine and then game on a bit after midnight.
   Well, I raided, I tombed, and the game worked. But I knew I wouldn’t have the time to play the full thing…so it could wait until next time. Whenever next time is. I’ll buy it eventually. Fit it in. Winter is a time for raiding tombs, not summer.
   I stare out of the window at weather that refuses to break into rain. Okay. I can go with that non-flow. There is water, though. I stare at the table. The table has a small jug on it. Paper cups. She won’t want a cup of water, will she?
   The young couple sitting amidst the other cluster of chairs? Boy and girl are the only customers here. Until the arrival of a more familiar duo. No, I don’t know the new people. I recognise the pattern, though. Younger person (carer) and older person (cared-for) come in and say hello to my mother.
   She acknowledges them. Maybe she’s just tired, but she isn’t very interactive. That can be the sign of a crash, an infection, or the hard reality of being awake all night. The older man offers my mother water after complaining about his floating head…a side-effect of the pills.
   My mother foolishly accepts the water. The older man’s arthritis kicks in, spraying rain across the table. He retreats to the toilet for paper to mop up the mess. The drink is handed over in passing. My mother samples her drink and makes a face. Apparently, she expected milk. Even though she saw the water being poured.
   Routine. Expectation.
   According to plan, just then, going by routine, the doctor walks in. I have to time this right. He checks in with staff and marches to his office at the end. It’ll take him a short while to fire up the computer in there. I wait for the arthritic man to return. Arthritis inevitably slows him. Now I can head to the toilet and ditch the cup of water.
   I am back in time for the doctor’s reapparance. We get through it. I make a note of the return appointment and consider the weather we’ll face then.

After that, we reverse the film and make our way (mostly) back the way we came in. No young couple. Arthritic man is gone. There are two new faces in the chairs. Familiar patterns. I stare at familiar patterns on the walls and floor and wonder why hospital décor is chosen to be as sickly as possible.
   I’m offered a detour inside the clinic almost immediately, but I stick to routine. A phantom whistler dawdles behind us and vanishes. She’s more chatty on the way home. We near a fence with foliage sticking through and she trails her fingers against the leaves.
   I seize this interactivity and change the route slightly to take us closer to plants. Not jaggy plants. I steer from those. But she likes trailing her fingers along plants, and naming them, or talking about other things. It doesn’t rain. Instead, the sun pokes out from behind giggling clouds.
   Strangely, we are almost overcome by jungle – and crap pavements – very near the end. But we survive the ordeal and I assemble the ramps again. This time, the inner ramp sits under the outer. I struggle to make it indoors. Next time, I’ll remember the more efficient method of getting back inside – hire four sturdy wrestlers to carry the wheelchair in.

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